Some people might place flowers to honor a friend’s death. I will lie my body down.
Three hundred and sixty five days ago my friend Dr. Suzanne Wedel died from ovarian cancer. Her daughter called to tell me while I was standing on an empty beach, watching the gulls hover over iced waves. I was willing time to stand still. Three hundred and sixty five days later, I honor Suzanne with a surgery date, making good on a promise I made to her. Doing all I can so history does not repeat itself.
My mother was diagnosed with ovarian cancer when I was twenty-one years old and she was forty-seven. We coped. We fought. We learned. We lost. That has always been the nature of ovarian cancer, no different in 1982 or 2017 — once diagnosed, a woman’s risk of dying is exponentially higher than any other female cancer. It hides, divides and grows unseen. Once ovarian cancer is diagnosed, you are past the easy stage. Period.
I trusted medical advances and advice for the last thirty years: yearly CA125 blood test, trans-vaginal ultrasounds, twice-yearly pelvics. Until Suzanne. Amazing physician, mother and friend with no familial history of ovarian cancer. Then — a pain in her shoulder. Tight waistband. After three years of every cutting edge surgery and treatment, she was gone.
Her illness highlighted that there is no magic wand no matter who you are: ovarian cancer, without an early detection test, is deadly. Her genetics were negative, but there I was sitting next to her on her couch with personal family history of this cancer. The gig was up. She made me promise; promise to remove my ovaries and fallopian tubes, SOON. She very plainly noted, as Suzanne could do so well, that I was foolish to play roulette with my body and my history.
What you should know: Today, oncologists advise if there is any family history, regardless of genetics, fallopian tubes and ovaries should be removed after bearing the last child. That they now believe ovarian cancer originates in the fallopian tubes. That waiting, until one is fifty-eight years old with a family history, no matter how informed you think you are, is stupid.
I have been given a clean bill of health and await my genetic map. Regardless, on April 20, 2017 I will go spend the day with an incredible surgeon, AK Goodman, at Mass General Hospital. I will have mourned my fertility, my hormones and my skin appropriately. I will have loose pretty pajamas and friends waiting for me at home. I will honor my friend and her family and what we know so far. And if we are supremely fortunate, the Suzanne XOXOUT Fund will expedite an early detection test so my children and their children can grow old with less risk.
Better than flowers. I can now stand on the beach and tell her she made a difference. In so many ways, but especially to me. But she knows that.
XOX back at you, Suzanne.